Discover and read the best of Twitter Threads about #MSAwarenessWeek
Most recents (2)
It is #MSAwarenessWeek, so I’m going to do a quick thread about what it’s actually like to live with multiple sclerosis.
When I was diagnosed, my main symptoms were balance problems & double-vision. If I try to stand on one foot, I fall over. Not too much of an issue, coz 1/?
When I was diagnosed, my main symptoms were balance problems & double-vision. If I try to stand on one foot, I fall over. Not too much of an issue, coz 1/?
how often do you stand on one foot? Literally every time you walk. In other words, I’m really unsteady on my feet, which is even worse if I close my eyes. This obviously becomes problematic when you do something like have a shower and wash your head. When I’m out and about 2/?
I use a walking stick to give my brain more information about where I am. I can also lose my balance if I turn around too quickly, say, or look up, so having the walking stick presents me with a literal crutch in case I need it. There are other times balance matters too, but 3/?
It's #MSAwarenessWeek , so I thought I'd do a mega thread on my invisible MS symptoms, from head to toe. Everyone with with #MultipleSclerosis is different; what goes on in my body is unique to me. So let's take a journey through my day to day world, because "I look SO well!"
We'll start with the head. SO much going on here. First off, brain fog and cognitive issues...feeling like you have a brain constantly trying to grasp for information but the cotton wool inside it won't let it. And words...losing words, forgetting words, replacing words...
NERVES! Particularly the trigeminal and occipital nerves...trigeminal neuralgia feels like a frazzled neuron party on your face, sending electric shocks hither and thither, like toothache in your whole head (tbh, I am able to control this well with medication)...
