Discover and read the best of Twitter Threads about #invisibleillness

Most recents (9)

Millions are missing
And the cooper’s wife is too
So we hold our silent vigil
For a girl in a gown too blue
Lost in halls and hospitals
A silver talisman bears true
The diagnosis they doubted
With “Maybe it’s just you?”
“Maybe it’s your fault
Did you ever think it might?
It sure looks like anxiety
Caught in fight or flight
This isn’t an emergency
I’ve no time to spare tonight
For another hypochondriac
Who thinks her Google search is right”
The words echo again
We’ve heard them all before
Generations of us girls
Lost to fable and to lore
Seal wives and fae women
Changelings left by the door
You wouldn’t hear our screaming
So now you’ll hear our roar
Read 15 tweets
"The Lyme disease bacteria—Borrelia burgdorferi—is definitely one of the smartest bacteria on the planet.⁠ The spirochete is a spiral shaped organism. And because of its spiral shape, and the fact that it has many tales, called flagella... A pink squiggly bacteria (s...
...this organism knows how to move through the tissues. It can disseminate throughout the body and into your central nervous system.⁠
So we know what syphilis can do to the body—which is a spirochetal infection. And the problem is, Lyme is the great imitator, just like syphilis was.⁠

The most common misdiagnoses that I see in my practice are people who have been diagnosed with chronic fatigue syndrome...⁠
Read 9 tweets
𝗗𝗶𝘀𝗮𝗯𝗶𝗹𝗶𝘁𝘆 𝗶̶𝗻̶𝗰̶𝗹̶𝘂̶𝘀̶𝗶̶𝗼̶𝗻̶ 𝗲𝘅𝗰𝗹𝘂𝘀𝗶𝗼𝗻 𝗶𝗻 𝘁𝗵𝗲 𝘄𝗼𝗿𝗸𝗽𝗹𝗮𝗰𝗲: a deeply disappointing thread 👇
First, let's set the scene with a couple of key facts:

👉 In the UK alone, it is estimated that 1 in 5 people have a disability

👉 80% of those people have an invisible disability

👉 The UK workforce contains over 4.4m disabled people

Okay, now onto the bad stuff👇
#DYK that almost half of disabled people in the UK are unemployed?

By December of 2021, the percentage of disabled people who are either unemployed or economically inactive had risen to 47.7%

- @ONS
Read 24 tweets
Thread 🧵
Being Autistic for me is so similar to having my invisible illness and being an ambulatory wheelchair user due to peoples judgements and assumptions about my disabilities and physical health.
#ActuallyAutistic #allautistics #AutismAcceptanceMonth #AutismAcceptance
(I’ve had 3 knee surgeries and will need a knee replacement eventually and I have Ehlers Danlos Syndrome and heart condition etc)
1. People say I don’t look Autistic.
People also say I don’t look sick or disabled. But it’s not something you can always actually physically see. You can’t see Autism just like you can’t see a lot of disabilities and physical health conditions.
Read 22 tweets
In honor of #EndometriosisAwarenessMonth: This is for the #MedTwitter community - especially #OBGYNTwitter - with the hope that it will help at least 1 future endo patient have a better experience than I did. A long 🧵: 1/?
3 weeks ago, I had an 8+ hours-long endo excision surgery that resulted in a unilateral #salpingectomy, an #appendectomy, & a partial #BowelResection. The thing is, it didn’t have to be this way. 2/?
I’ve had horribly painful periods since I was a teenager. Doctor said it was normal, just start taking ibuprofen a couple days early. By 18yo, oral contraceptives were recommended to manage it. That ‘worked’ for about 10 years? 3/?
Read 14 tweets
All of my work interactions are virtual at the moment, as I am sure many of yours are too. In this format I think it is even more difficult to be aware of an #InvisibleIllness or #InvisibleDisability so for #MEAwarenessHour I'd like to ask you to keep this in mind.
It will be harder for you to see if someone is facing challenges so it's perhaps even more important than ever to be kind & considerate in all of your online work interactions.
It's easy to be dismissive, to compare someone else's situation to your own, or to persuade yourself that perhaps your colleague's slow progess is because of a lack of effort. It's important to have empathy & not to judge.
Read 7 tweets
I’m level 37 ✨✨✨
Celebrating that I’ve been keeping myself alive - and well - for the last 37 years living with type 1. This month marks my #Diaversay. As I don’t know the exact day of my #diagnosis - it was at the beginning of the summer break - I have decided it's July 7 🎉 Image
I had been having the usual symptoms for some time before I arrived at my grand parents for the holidays: weight loss, unquenchable thirst, constant peeing. My grandma realised something was wrong and took me to the GP.

#type1diabetes #invisibleillness #diagnosis
I thought I’d share a throwback picture to remind me how far I’ve come with living with #T1D for 30+ yrs: rigid treatments in the 1980s, denial in my teen yrs, hiding to inject my life saving #insulin, 1st pump in 2009, 1st #CGM when I was pregnant in 2010, & looping last yr 🟢 Image
Read 4 tweets
My name is Lelena.

I am a #ChronicPain patient.

I am required to pee in a cup monthly to show #compliance to my #LowDose #opioid regimen.

I am painted as despicable, helpless, & #unclean by the powers that be.

I am a modern-day #Leper.

#EndStigma #PainLeper
Newsflash, America:

I'm not JUST a #ChronicPain patient.

I am not helpless.

I am not #unclean.

I am not #despicable.

I don't just use #pills to overcome my #SeverePain.

I refuse all #stigma, misconceptions, assumptions, and #labels.

I am an #Overcomer.
I will be criticized for calling myself a #ChronicPain patient.

People will say: she wallows in illness. She enjoys it! She IDENTIFIES with her pain.

Wrong. It is part of my reality. I must face it & battle it daily.

And I do. Despite all the negativity I face from others.
Read 5 tweets

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