Rev. Dr. Stacey Simpson Duke Profile picture
Pastor @fbca2. Research advocate passionate about patient empowerment. Stage 4 leiomyosarcoma. Truth-teller, hope-haver, flame-tender, dare-taker, outlier.
Feb 3, 2021 8 tweets 3 min read
Wondering if any parents out there have negotiated 504 or IEP #remotelearning accommodations for a teen with #ADHD. Trying to figure out what will work + what is reasonable when school is fully virtual.

@ErynnBrook I'm wondering if you or any of your followers might have ideas? FWIW, I also have #ADHD (my son's dx at age 8 was the aha moment that led me down the path to my own dx), so I have a deep understanding of his challenges + needs, but am out of my depth in trying to provide all the supports + structure to help. Was managing it okay pre-pandemic.
Jan 18, 2021 20 tweets 4 min read
Today, I'm beginning my 5th year of living with stage 4 cancer. Three years ago today, I was diagnosed with metastatic #leiomyosarcoma.

Four years ago tomorrow, I was misdiagnosed (the primary tumor in my thigh was dx'd as a DVT; the tiny nodules in my lungs were dismissed as benign scar tissue).
Mar 25, 2020 11 tweets 3 min read
As a pastor, I have something to say about Trump's call to "pack the churches" on Easter. The Jesus I follow and proclaim explicitly cared for the most vulnerable and for those who forgotten, overlooked, or mistreated by the powers-that-be.
Sep 12, 2018 22 tweets 3 min read
It's almost midnight and I'm still processing this morning's appointment, my first with this particular doctor. Having never met before, the first sentence out of her mouth (after introductions) referred to my #stage4cancer. In the 8 months since my diagnosis, none of the many doctors, nurses, or other medical personnel I've seen have used that language about my situation. None. Yes, I have metastatic cancer. Yes, that is #stage4cancer. But the language of cancer is such a tricky thing.
Jan 7, 2018 21 tweets 5 min read
ICYMI: on Friday, a megachurch pastor whose brand is all about marriage and sexual purity admitted to sexually assaulting a 17yo girl when he was her youth pastor (he called it an "incident" not an "assault") He didn't deny the details she shared, which make clear that it was an assault.