Discover and read the best of Twitter Threads about #HealthcareInAmerica

Most recents (7)

Just doing some digging. #Pain is extremely nuanced. And the approach should also. W my kids #health & #pain there has been continued lack of knowledge, assumptions, & unwillingness to understand.
➡️#Anatomy of those that had #TPAIT & lack of understanding
by many docs 1
how this can impact #pain
➡️ Not identify or understanding impact of #MalabsorptionSyndrome
➡️Assumption that removal of #pancreas should immediately ‘solve’ issue of #ChronicPain
➡️ #GastricEmptying issues
➡️ Age of my kids (too young to have #pain)
➡️ Lack of 2
understanding & identification of #MedicalTrauma
➡️T3c #Diabetes
➡️ Impact of #NASH on #pain & options for #care

There are numerous factors that are critical in #Treating an #ChronicPain in #Individuals. They list of few listed above that are factors w my kids, have often 3
Read 8 tweets
Almost 25 years ago I entered the world 🌍 of #raredisease when 1st my husband was dx w #PRSS1 & then our children.
What I’ve learned is #HealthcareInAmerica is brutal & often #harms those most in need.
The system is broken.
There is no disguising it.
I believe that our 1
#Healthcare system truly only benefits a small populous; individuals that are mainly #healthy & don’t belong to a marginalized group.
There are monumental system issues that need to be addressed that impact #medicalprofessionals ability to provide necessary 2
care. I understand that. I believe that #patients, #caregivers #medicalprofessionals need to work in collaboration to push back on the systemic issues that plague the system. I absolutely can give & find grace in many situations.
What I have no time for is the void of 3/
Read 19 tweets
Honestly #medtwitter why is it so damn had to have a consistent plan in place for #patients w #complexhealth issues when person necessitates hospital frequently?

Also, why get upset with #patient when lack of coordination between #medicalprofessionals, assumption of #patient 1/
goals as well as often your own biases result in care that is subpar & harmful & leads to said hospitalizations 🤦🏻‍♀️. I understand you all are in a difficult position yourselves but you definitely have much more #power than #patient. 2
Also, why does it seem so difficult for #hospitalists to pick up phone 2 specialists? I know many of you work hard to acknowledge your biases, to incorporate the #patients voice in care planning, BUT if you are not one, YOU are harming #patients. #HealthcareInAmerica 3/
Read 4 tweets
THIS is #HealthCareInAmerica for patients with #ChronicPain due to @congressdotgov allowing @DEAHQ to regulate the Practice of Medicine through Intimidation, Coercion & unwarranted prosecution of Clinicians & Pharmacists.

Patients making arrangements for #VAD in Switzerland 😭 Image
We can hope that the @USSupremeCourt ruling today on the #Ruan case which required the government to prove beyond a reasonable doubt that the CSA was Knowingly or Intentionally violated will encourage a return to #PatientCenteredCare

supremecourt.gov/opinions/21pdf…
However, as long as the @DEAHQ, @CMSGov & Fraud Task Forces continue to target clinicians based on a subjective definition of medical treatment, many may still be hesitant to provide the treatment necessary to restore function & quality of life to patients with #RareDisease,
Read 7 tweets
The options for patients deprived of medical assistance to maintain their health are untenable.

For patients in my daughter's situation where her Seizure RX is involved the outlook is bleak. With less than 10-days remaining to resolve the situation her health & safety are Image
uncertain.

Will she survive? That's our main primary concern.

Will she die of medical neglect or be forced to attempt to self-medicate via the illicit market.

Forced to play a deadly game where all potential *options* may be cost her her life.
Read 7 tweets
Please help us help you #MedTwitter

By working together we CAN get the Government to 🛑 Interfering in the Practice of Medicine

#StopCriminalizingPatientCenteredCare

Please consider Signing to help restore Clinician Autonomy & eliminate the use of this Criteria
⬇️ to 🎯 Drs Image
Our Requests include:

The Department of Justice, all federal agencies and federally funded programs shall immediately cease any program that targets clinicians for investigation and/or prosecution that uses a subjective definition of Legitimate Medical Treatment.
Congressional Hearings shall be scheduled by the House Oversight Committee and the Judiciary Committee to investigate these issues and form a plan for corrective action.

#HealthCareInAmerica

#ProtectPatientsAndDoctors
Read 4 tweets
#HealthCareInAmerica is:
Rationing life sustaining medications due to costs
Going in debt due to #health issues EVEN though you have ‘great’ insurance and a good job
Having to do GoFundMe to be able to cover med care
1/
#HealthCareInAmerica is:
Meds that cost literally pennies 2 make that cost hundreds per month for the #patient
#Physicians spending more time documenting care than providing care
Entities other than #physicians dictating care; administrators, PBMs, insurance companies, 2/
#HealthCareInAmerica is:
politicians, government entities.
Healthcare NOT focused on #health but on money that can be made,
#Physicians being pressured to see #patients in 15 minute increments no matter the need,
#Patient voices being silenced
#Physcian voices being silenced 3/
Read 4 tweets

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