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#Thread for #MEAW2020

So it's #MEAwarenessDay #MEAwarenessWeek. That's the disease #MyalgicEncephalomyelitis if you don't know.

My Queen @NicolaCJeffery lives with this. We've been treating her for 15 months now at a cost of thousands of pounds, because the #NHS won't help 1/7
2/7 Or rather it will help, but only by telling the 250k+ people who live with #MEcfs in the UK that it's 'all in your head'.

Today was a milestone for Nic. We've now reduced her from 78 tablets & 9 oral solutions a day to 40 and 4.

I'm not sure many people really 'get it'
3/7 Can you imagine taking 78 tablets A DAY? That's what it's taken to try & get her better. But it's come at a huge cost.

It's been the hardest thing me & her have ever done & our lives have been HARD. #Lockdown? Hard? You've no idea. Some people helped with fundraising, so TY
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