Discover and read the best of Twitter Threads about #T21

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Living w Disability

šŸ”¹I donā€™t know what youā€™re going through
šŸ”¹Is every day a struggle?
šŸ”¹Greg suffers #DownSyndrome, Alz Dz, Depression, Catatonia
šŸ”¹ Yet today he said, ā€œSundayā€™s donut day, but letā€™s have ā€˜chockleā€™ anyway & Iā€™ll be ok.ā€

Be inspiredā€¼ļø

(pic w perm)
#Recovery Image
Read 4 tweets
Dear MAGA making fun of people with Down Syndrome. Maybe you should go out of your way to meet one? They have unconditional love and count on people around them to be kind and guide them through this life. This is my son James Tate and he will melt your heart. #T21 ā¤ļø Image
He gets into trouble like any other kid. Like finding the wipes and taking everyone out. Image
He loves to swim Image
Read 24 tweets
1/šŸ§µ Beauty in the Nowā€¦

While normally Greg doesnā€™t #worry, in this case, he succumbed to fear of change.

He was screaming and Crying in Fear - see tweet below.

How did he get through it?
What did he teach me?

#NothingDownAboutIt #DownRightPerfect #UpSyndrome #Tribe321
2/ Greg held his head in his hands and trembled with worry.

We were disrupting his usual Saturday of watching ā€œI Love Lucy.ā€

Think Rain Man type of dependence on routine &
thatā€™s Greg.

So when Kim and I took him to the mountains, it totally messed him up.

What happened?

#T21
3/ At first Greg got angry with us for taking him on this trip.

I mean, REALLY angry.

And we know that #ANGER is just one letter away from #DANGER.

He was heading in a dangerous path of rejecting something that could be healing & good in his life.

#TheLuckyFew #FindYourTribe
Read 7 tweets
1/šŸ§µ Are you happy?

My brother w #DownSyndrome is teaching me tons of life lessons.

In medicine & in life, I make big decisions based on guesstimates of otherā€™s Quality of Life #QOL.

I often GET IT WRONG!
Ā 
What do adults w #disability teach me about TRUTH?

Can I learn? Image
2/šŸŽ„ How do we ā€œcalculateā€ someoneā€™s #QOL?
Ā 
#Confession: I get it all wrong when I impose MY judgment onto THEIR life.
Ā 
Greg, my 57 y/o brother-in-law with Down Syndrome, has a better QOL than I do.

Why?

Digest thisā€¦read onā€¦
Ā 
#DownSyndromeLove
3/ My working definition of QOL is ā€œthe ability to give & receive love.ā€

REREAD THATšŸ‘†

Greg understands the Law of the Gift: Treasures GROW when we give them away.

Itā€™s the opposite of hoarding.

Yet, giving ourselves to others can be SCARY. Greg ponders deeply these emotions. Image
Read 16 tweets
@AAPPres Dr. Kyle Yasuda shares the AAPā€™s support for #T21 & youth e-cig ban policies at the #AAP19 opening plenary

#mnleg needs to take up this important legislation in 2020 Image
ā€œKids donā€™t judge you based on your title or your resume, they judge you on your voting record, how often you show up whether they deserve it or notā€ @JoshShipp delivering a powerful plenary speech at #AAP19 Image
ā€œEvery kid is one choice away from being a statistic. But that choice isnā€™t always one they get to makeā€ #AAP19 Image
Read 13 tweets

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