Discover and read the best of Twitter Threads about #UpSyndrome

Most recents (4)

Living w Disability

šŸ”¹I donā€™t know what youā€™re going through
šŸ”¹Is every day a struggle?
šŸ”¹Greg suffers #DownSyndrome, Alz Dz, Depression, Catatonia
šŸ”¹ Yet today he said, ā€œSundayā€™s donut day, but letā€™s have ā€˜chockleā€™ anyway & Iā€™ll be ok.ā€

Be inspiredā€¼ļø

(pic w perm)
#Recovery Image
Read 4 tweets
1/šŸ§µGratitude is Painā€™s big brother
Ā 
ā–ŖļøProf Greg teaches me to accept life on lifeā€™s terms
ā–ŖļøICU pts teach me how to traverse pain
ā–ŖļøGratitude is their close companion
ā–ŖļøGratitude is not just a tenet of etiquette ā€“ itā€™s an essential quality of well-being

#UpSyndrome
Pics w perm Image
2/ I canā€™t pay gratitude w a checkbook, only from the ā¤ļø

šŸ“My Gratitude Ledger is in deficit because I donā€™t nurture #Wisdom
Ā šŸ“I underutilize this superpower of recovery
Ā šŸ“Gratitude is Gregā€™s antidote to victimhood
šŸ“It helps him rise above any situation

#TheLuckyFew Image
3/ Gratitude canā€™t be reduced to verbal or written acknowledgment of a gift šŸŽ
Ā 
Greg has a deep sense of awareness of his interdependency on others, you & me, his sisters & brothers.

Heā€™s gracious in heartfelt appreciation despite living w great disabilities.

#FindYourTribe Image
Read 19 tweets
1/šŸ§µ Beauty in the Nowā€¦

While normally Greg doesnā€™t #worry, in this case, he succumbed to fear of change.

He was screaming and Crying in Fear - see tweet below.

How did he get through it?
What did he teach me?

#NothingDownAboutIt #DownRightPerfect #UpSyndrome #Tribe321
2/ Greg held his head in his hands and trembled with worry.

We were disrupting his usual Saturday of watching ā€œI Love Lucy.ā€

Think Rain Man type of dependence on routine &
thatā€™s Greg.

So when Kim and I took him to the mountains, it totally messed him up.

What happened?

#T21
3/ At first Greg got angry with us for taking him on this trip.

I mean, REALLY angry.

And we know that #ANGER is just one letter away from #DANGER.

He was heading in a dangerous path of rejecting something that could be healing & good in his life.

#TheLuckyFew #FindYourTribe
Read 7 tweets
1/šŸ§µ Are you happy?

My brother w #DownSyndrome is teaching me tons of life lessons.

In medicine & in life, I make big decisions based on guesstimates of otherā€™s Quality of Life #QOL.

I often GET IT WRONG!
Ā 
What do adults w #disability teach me about TRUTH?

Can I learn? Image
2/šŸŽ„ How do we ā€œcalculateā€ someoneā€™s #QOL?
Ā 
#Confession: I get it all wrong when I impose MY judgment onto THEIR life.
Ā 
Greg, my 57 y/o brother-in-law with Down Syndrome, has a better QOL than I do.

Why?

Digest thisā€¦read onā€¦
Ā 
#DownSyndromeLove
3/ My working definition of QOL is ā€œthe ability to give & receive love.ā€

REREAD THATšŸ‘†

Greg understands the Law of the Gift: Treasures GROW when we give them away.

Itā€™s the opposite of hoarding.

Yet, giving ourselves to others can be SCARY. Greg ponders deeply these emotions. Image
Read 16 tweets

Related hashtags

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3.00/month or $30.00/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!