Discover and read the best of Twitter Threads about #fibroids

Most recents (13)

Lots of discussion about lack of advancement in women's health

Here is the thing. We will NOT advance reproductive/pregnancy/women's health science by continuing to do clinical trials that are NOT based on fundamental mechanisms that drive health & disease

hang on...🧵🧵🧵
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Let me explain:

Millions (millions)đź’˛ have been spent to perform clinical trials to decrease adverse pregnancy outcomes such as #preeclampsia

Trials on Vitamin C, E, magnesium, aspirin, calcium

Perhaps, you might be thinking--those are pretty generic interventions đź‘€

2/
And you would be right. They are.

Vit C & E clinical trial was based on concept that there is evidence of oxidative stress in placentas from preeclamptic individuals

OK. Yes, but oxidative stress is a pretty ubiquitous biological event
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Read 11 tweets
🧵1/

First, read @ShawnteJamesMD’s whole thread.

It’s informative and moving…
🧵2/

Second, this thread especially grabbed my attention coming on the heels of yesterday’s @NIH_ORWH virtual conference on gaps in research about the health needs most particular to women orwh.od.nih.gov/research/2021-…
🧵3/ One of the most stunning (and maddening?!) slides was a #dataviz that used analysis from this paper: liebertpub.com/doi/full/10.10…
Read 9 tweets
1/ This is a very, very long thread. 🧵
CW: medical issues, menstruation, blood

I’ve been going through some uterus-related problems for awhile - I'm fine!! But I’ve found a lot of comfort in reading about other people’s experiences and wanted to share mine...
2/
...just in case it can help someone else. Even if it’s only to not feel so alone. Obviously, I am not a doctor. If you recognize yourself or your symptoms in any of this, I recommend speaking to your doctor about it. (Which I know is a privilege in and of itself.)
3/
In September 2019 I went to my doctor because I wanted to stop menstruating, or at least lessen it significantly. Since 2016ish, my periods had gotten: heavier, more painful, longer, and more frequent. Basically, worse in every possible way!
Read 56 tweets
10 common causes of heavy menstrual flow you should know

1. Fibroids
2. Pelvic infections
3. Some drugs
4. Polyps
5. IUCDs
6. Endometriosis
7. Adenomyosis
8. Blood clotting problems
9. Cancers of the womb or cervix
10. Thyroid disease

A thread 🧵

{Share to who needs this!}
If a woman loses more than 80ml of blood in one period, the bleeding is heavy. Heavy periods usually often come with blood clots.

Although methods of quantifying the exact amount of blood loss are not usually accurate, most women know when their period is heavy.
Nearly 20% of women over 30 years have #fibroids.They are of different types & may cause heavy menstrual bleeding.

Treatment of fibroids depends on the many factors so see your doctor.
Read 15 tweets
Uteri owners have it hard.
Ouch. Ouch. Ouch.
#endometriosis #fibroids #womenshealth #menstrualhealth
On a positive note. I did not pass out or almost pass out this month. đź‘ŤLast two months my mom was newly in the ICU then she had newly passed away and I could not get out of bed without syncope or near syncope. And I had just had my 2nd vaccine so was already not well.
There are all these wise people who say things about suffering but it’s honestly true..

..that the more suffering you experience the more gratitude you can have..

..because when something is not as bad as it used to be do you feel immense relief, #gratitude
Read 4 tweets
If you study #vaccine + #sideeffect... you automatically cross into #healthcare & #medicine regardless of what other label applied

I'm a #vaccineswork #vaccinessavelives #pediatrician & #tweetiatrician careful on #data #quality particularly for women, WOC, POC

This is my lane
Every seeming kind of "not a big deal" thing related to #vaccineswork blows up in our faces like death threats via online mobs against #pediatrician #SciComm

May seem extreme but take a look at the escalation of responses to my identifying "bad #data"

medpagetoday.com/special-report…
We can't wait for yet more false "vaccines affect (THEY DO NOT) fertility" trope to circulate

anyone who is generating data on #vaccine "#sideeffects" needs to think about clean, quality, meaningful data. Junk data: common, but this actually matters

healthline.com/health-news/no…
Read 9 tweets
Peak Twitter. Woman w/ stage 4 #endometriosis, #fibroids, latter condition more common in WOC, post 2 gyn surgeries

identifies online #womenshealth #vaccine #survey as poor #data #quality

instead of improving, response ~ "not to attack... but am glad you are not my doctor"
Indeed, I engage patients & families 1:1 without forcing them into fields I've pre-created for my #data collection, based on assumptions I have from personal experience

Respecting women & WOC allows people to not be forced into leading questions or pre-created fields
Measuring needs to be #quality to deliver quality. Your #results will never be better than your #studydesign or collection methods. Wrote this cuz we need less measurement & more humanity. I'm in b-school & everyone sends a new survey every 30 sec..
journals.sagepub.com/doi/abs/10.117…
Read 7 tweets
Am grateful my #endometriosis and #fibroids only affects me severely one day a cycle and is not severe every cycle. Still that one day can make me unable to get out of bed or sit up without passing out. Severity worsens with stress.

Today I feel have my life back. Thank God.
Mind you, my definition of severe is “I pass out from pain.” I don’t know if it is really a good thing I self suppress so well that I don’t even feel or react to pain until it threatens my ability to stay conscious. I don’t glamorize “grit” that is a lack of self compassion
It is an accommodation to the pathology in the world we live that was apparent with the events this week. 6 Asian women killed but the compassion was for the killer who “had a bad day” by authorities while the women were mislabeled as sex workers to validate their deaths.
Read 31 tweets
Woah..that was freaky but familiar. Was lying down & decided to get up to take pain meds for #endometriosis and #fibroids and it felt as painful to get up as the day after surgery. In kitchen, sweating, lightheaded. Quickly squatted to avoid passing out holding onto fridge door
..which swung open..but I did not fall. Then once head feeling better, stood up long enough to take meds...then walked, wobbly and lightheaded to chair. I can't quite feel my palms but that will come back. This probably gets to be called 10/10 pain..but maybe really an 8/10
Great..and a migraine too..scotoma.. taking a migraine med and lying down. Man, when it rains it pours.

Mother Nature is such a misogynist.

SO glad I did not decide to rent a car and try to go Finger Lakes this weekend to see peak foliage.
Read 88 tweets
9 common causes of heavy menstrual bleeding everyone should know

1. Fibroids
2. Pelvic infections
3. Drugs
4. Polyps
5. IUCDs
6. Endometriosis
7. Blood clotting problems
8. Cancers of the womb or cervix
9. Thyroid disease

A thread 🧵

{Share for awareness!}
If a woman loses more than 80ml of blood in one period, the bleeding is heavy.

Although methods of quantifying the exact amount of blood loss are not usually accurate, most women know when their period is heavy & heavy usually often come with blood clots.
1
Nearly 20% of women over 30 years have #fibroids.

They are of different types & may cause heavy menstrual bleeding.

Treatment depends on the many factors. So see your doctor. Source: National Health Service, Fibroids, United Kingdom,
Read 14 tweets
A third of British women report a lack of interest in sex
“Samira Ahmed has won her sex discrimination equal pay claim against the BBC" theguardian.com/media/2020/jan…
Postpartum IUD is also done in the of United KingdomUK. Women with #Fibroids in pregnancy are also at higher risk of fibroids not regressing naturally after childbirth if a hormonal iud is inserted
Read 180 tweets
Yesterday did a double session with a new #womenshealth specialized #mentalhealth clinician - have possible ADHD
my usual brain hack strategies are not effective in entirely online grad school + #endometriosis + #fibroids + move to Boston in #pandemic
psychologytoday.com/us/blog/the-be…
Cuz, in online/Zoom group executive coaching, if a topic is brought up around how women psychologically respond to sexual assault in the workplace, & I have not slept all night & I am in 8/10 pain - I just don’t have psychological reserve for that topic
https://t.co/nHwNYVwRUE
Interesting thing: tho my class is ~80% male, have felt much more comfortable being open about #womenshealth issues affecting my overall well-being or attention span among male engineers & execs

than when in all female environments of fellow physicians who expect “suck it up”
Read 14 tweets
Umbereen S Nehal MD MPH: who is this person? Several people have been asking

A thread

Where am I from? Hooboy.
Let’s say, citizen of the world, human ping pong ball. Third culture kid. Genetic mutt

Born: 🇺🇸
🇵🇰 parents - when my parents born colonial rule, pre-Pakistan
To thoroughly annoy my Twitter bestie, @DrvanTilburg

Am an ENFP - a cross between Snoopy, Robin Willians, Ellen Degeneres, Dr. Seuss, Charles Dickens, Upton Sinclair

I border on ENTP - love new info and love to challenge in order to break through barriers or limitations
My great-grandfather was given title "Khan Bahadur" (brave). As a judge, a brown man under Colonial rule, he threw the book at a British attorney. "Learn the law" if in his courtroom. Hence my stiff moral backbone

My mom & me:

(She loves this song)
Read 52 tweets

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